Tuesday, December 9, 2014

Humira & Kefir Update!

I know I promised I'd post how it's going with the kefir.  Got the process down pretty well; just fine tuning it.  I know have a constant supply of homemade milk and water kefir after a few setbacks.  So far I haven't had any bad side effects.  Water kefir is a good drink straight up which is how I usually have it.  Drinking 1 to 3 glasses of that a day.

Milk kefir is way to sour and tart for me to drink straight up.  I've been mixing it in things though and it's amazing!  I haven't had REAL milk and dairy for... I can't even remember how many years.  Being lactose intolerant I'd written off dairy years ago.  Well since the fermentation process actually consumes the lactose I can have milk again!  I have to be sure to do a full second ferment / maturing process.  That way all the lactose gets consumed.  I mix it in smoothies and cereal.  I'll be expanding my use of it as I fined recipes. 

We had some great news; Humira reimbursed me for the starter kit!  That was a huge relief.  So grateful they provide such assistance to those who need it.

I took my second dose yesterday.  Two shots this time around and next time I'll be at the maintenance dose of 1 shot every 2 weeks.  Man that second shot in my left leg kills.  Not sure why my left leg is so much more sensitive than my right.  Maybe I'm all tense from the first one?

It's been a bad week for symptoms.  For the last 7 days I've had a lot more blood and going more often.  While slipping backwards is bad enough I feel the most frustrating part is not knowing why.  Was it :  something I ate?  because I ate too much at once? stress?  maybe Humira was wearing off? Who knows!  Before this slump I was feeling OK... maybe the best I'd felt in months.

Real sick of this prednisone.  I feel like I'm roid rage'n more than ever; I'm sure those closest to me can tell.. .I'm sorry.  Sleep is hard to find.  Even if I manage to get to sleep at a descent hour I wake up in the night one or two times to go to the bathroom.  Sometimes I can't go back to sleep. 

Oh, almost forgot... I posted a new page you can see at the top.  It goes over how I got on the Humira Protection Plan to assist with affording the shots.  I also uploaded all the documents I had with lots of assistance programs for more than Humira or even UC.  If you feel you can't afford your meds you have to reach out to these organizations!  They are here to help!